Tuesday, January 20, 2009

Disability is my life.

And I'm completely finding myself in disbelief that this is what it's come to.

My child is disabled. My mom is disabled. I care for them. I worry about them both, 24/7.

My professional career, which began, years ago, as a temp job, has become completely and totally about disability. [and before you go there, it's totally about insuring against disability, not actually helping those with disabilities, unless you consider those who have become disabled after already having been insured, AND you are rich. It's not noble work.]


Lowcountry Mom said...

((((((hugs)))))))) I see what you mean, and that would be really tough. Disability is very hard on the caregivers, and for that to be your work life too.......what can you do about this? Is there another work option? I know, I know, this economy is not really the time for such a question....

Kelley said...

That is rough. My work is my outlet. Most don't know about Boo. Well they know that I have kids, but don't know 'about' Boo. And I like it that way.

Do you have any hobbies or something that you enjoy that is not disability related?

Please don't take what I am saying the wrong way, I am concerned that you are losing yourself in the carer role. I have been there. Please take some time for you.

Lyndsey said...

I can't imagine. I truly can't. I mean, I know what it is like to take care of the disabled, but it isn't the same. Do not get lost in this. Do WHATEVER you can to keep yourself afloat. Find something just for you. I've filled my spare time with frivolous hobbies but they save me every day. I'll be thinking of you. ((((hugs))))

Diane said...

Molly, I can relate to your worries.

I worry about Harley's disability constantly and concerns for his future are building. There are days where I feel I will explode trying to get him to do the easiest of tasks. Other days are easier.

Hang in there. I wish I had more to offer. I imagine that your overwhelmed on most days just keeping up with The Kid and your Mom.

Stephany said...

I understand the worry, and my job is related to the same disability field my daughter is at now; it's hard to find reprieve or peace of mind some days.

Hang in there.You are not alone.